My Boy's Life...

How would you like to endure chemotherapy every three weeks......for five years (and counting)?! How about MRI's three months for 10 years (and counting)? Or, hearing and vision appointments every 6 months... since just about birth (and beyond)? What about A LOT of surgeries and A LOT of other doctor's appointments?

There are just a few of the things my boy with Neurofibromatosis 2 has to put up with. It's been a challenge for sure. But, he has faced it with grit, determination and a certain sense of resignation.

I said when I started my site, I thought that it would cover things about an empty, or almost empty, nest. Well, not sure when my special needs almost 24 year old kid will be ready to fly the nest, but I do want to raise awareness of his condition, NF2.

Ever since he was diagnosed at nine years old (misdiagnosed at 6 months, but more on that in a later post), we have worked with a wonderful organization called Children's Tumor Foundation. CTF provides funding for research for NF1, NF2 and a family of NF related diseases. Every year, for the past 10 or so years or so, we have helped raised funds for a cure for NF at the Denver NF Walk. That walk is this weekend!

So, I'm posting and putting it out there to not only raise awareness, but may also raise some funds for the walk and our team Ryan's Renegades. Over the years our family has raised over $10,000 or more!

Children's Tumor Foundation has been consistently rated as one of the top charities that use most of their monies for research and support to NF individuals and their families and less for administrative costs. It has been a wonderful support to us over the years.

If you would like to walk or donate to our team, or even just check out what NF and CTF is all about, click one of the links above. And, thank you,

thank you, THANK YOU to our friends and family who have graciously donated and been such a support over many, many years. We appreciate and love you more than you know!